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	<title>Caregiving Archives - DOCTOR HEALS</title>
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	<title>Caregiving Archives - DOCTOR HEALS</title>
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		<title>You Matter Too: Reducing Stress While Caring for Autistic Adults</title>
		<link>https://www.doctorheals.com/cn/you-matter-too-reducing-stress-while-caring-for-autistic-adults/</链接>
		
		<dc:creator><![CDATA[Daniel Chen]]></dc:creator>
		<pubdate>Tue, 30 Jun 2026 07:18:26 +0000</pubdate>
				<category><![CDATA[Promotion]]></category>
		<category><![CDATA[Autism]]></category>
		<category><![CDATA[Burnout]]></category>
		<category><![CDATA[Caregiving]]></category>
		<category><![CDATA[Stress]]></category>
		<guid ispermalink="false">https://www.doctorheals.com/?p=10920</guid>

					<description><![CDATA[<p>Caregivers of autistic adults often find themselves quietly isolated. Extended family may not fully understand the demands involved. Friends without similar lived experience can feel distant. Over time, the caregiver's world narrows.The antidote is finding people you trust — starting within family, then close friends, then joining existing caregiver support groups. If none of those fit, some caregivers have created their own.</p>
<p>The post <a href="https://www.doctorheals.com/cn/you-matter-too-reducing-stress-while-caring-for-autistic-adults/">You Matter Too: Reducing Stress While Caring for Autistic Adults</a> appeared first on <a href="https://www.doctorheals.com/cn">DOCTOR HEALS</a>.</p>
]]></description>
										<content:encoded><![CDATA[<h5>作者：林君贤</h5>
<p>在飞机上，当氧气面罩从头顶面板落下时，指示总是相同的：先戴好自己的面罩，再帮助旁边的人。这感觉不对，尤其是当那个人是你的孩子时。你的本能会告诉你先去扶他们。.</p>
<p>但科学证据是明确的。在 35,000 英尺的高度，如果没有加压，你大约有 <strong><sup>1</sup></strong>在缺氧——氧气剥夺——发生前，有 15 到 20 秒的清醒时间。这会悄无声息地发生。你可能感觉一切正常，直到你再也动不了。如果你花那几秒钟笨拙地去戴孩子的面罩，你会在完成之前失去意识。现在你们两人都没有氧气了。.</p>
<p>先戴好您自己的面罩——这只需要三到五秒钟——这样您就能保持清醒、镇定，并能够帮助他人。这是少数几种情况之一，在这种情况下，优先考虑自己无疑是最有爱心的做法。.</p>
<p>对于照顾有中度至重度需求的自闭症成年人的护理者来说，原则上没有太大区别。.</p>
<p>多年来，我在新加坡与这些家庭共事，我目睹了照顾者疲惫的样子——我也看到了照顾者允许自己喘息时的样子。以下是两种带来切实改变的做法。.</p>
<p><img fetchpriority="high" decoding="async" class="alignnone wp-image-10927" src="https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-2.png" alt="Doctor Heals_Wellness Resource_You Matter Too Reducing Stress While Caring for Autistic Adults 2" width="1200" height="800" srcset="https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-2.png 876w, https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-2-600x400.png 600w, https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-2-768x512.png 768w, https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-2-18x12.png 18w, https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-2-800x533.png 800w" sizes="(max-width: 1200px) 100vw, 1200px" /></p>
<h4><strong>关爱自闭症成年人：轮流，有意识地</strong></h4>
<p>照顾孩子不一定非要一个人承担。有些夫妻会分担时间：一个家长负责孩子从日托中心回家直到晚餐，另一个则负责从晚餐后到孩子睡前。还有些夫妻会安排更长的休息时间——我认识的一位母亲会定期独自出国旅行，完全从照顾中抽离出来。在那段时间里，她唯一需要照顾的人就是她自己。.</p>
<p>每个家庭的节奏都不同。重要的是，看护者之间要坦诚沟通，并就休息时间的分配达成一致。.</p>
<p><img decoding="async" class="alignnone size-full wp-image-10929" src="https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-3.png" alt="Doctor Heals_Wellness Resource_You Matter Too Reducing Stress While Caring for Autistic Adults 3" width="1200" height="800" srcset="https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-3.png 1200w, https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-3-600x400.png 600w, https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-3-768x512.png 768w, https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-3-18x12.png 18w, https://www.doctorheals.com/wp-content/uploads/2026/07/Doctor-Heals_Wellness-Resource_You-Matter-Too-Reducing-Stress-While-Caring-for-Autistic-Adults-3-800x533.png 800w" sizes="(max-width: 1200px) 100vw, 1200px" /></p>
<h4><strong>建立并依靠一个值得信赖的支持团体</strong></h4>
<p>自闭症成年人的照护者常常感到默默地孤立。大家庭可能不完全理解其中的需求。没有相似生活经历的朋友会感到疏远。随着时间的推移，照护者的世界会变得狭窄。.</p>
<p>解药是找到你信任的人——从家人开始，然后是亲密的朋友，然后加入现有的照护者支持团体。如果这些都不适合，有些照护者已经创建了自己的团体。.</p>
<p>一旦你找到了这个群体：积极主动。有两件事经常让照护者望而却步——担心会给别人添麻烦的内疚感，以及不确定别人能否满足孩子的需求。.</p>
<p>关于内疚：爱你的人想为你挺身而出。让他们去做吧。.</p>
<p>关于信任：从小处着手。让你的支持团体在你在场的情况下与你的孩子相处。每一次顺利的经历都在悄悄地建立你最终可以放手休息的信心。.</p>
<p>空瓶无法倒出。照顾好自己的人并不是自私——他们是在确保自己的救生衣，以便能够持续照顾最需要他们的人。.</p>
<p>&nbsp;</p>
<p>参考文献<br />
<strong>1.</strong> <em>低氧性缺氧与军事航空中的脑功能</em> — PMC8171399 (<a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC8171399/" target="_blank" rel="noopener">https://pmc.ncbi.nlm.nih.gov/articles/PMC8171399/)</a></p>
<ol start="2">
<li>Warreman, E. B., Lloyd, S. E., Nooteboom, L. A., Leenen, P. J. M., Terry, M. B., Hoek, H. W., van Rossum, E. F. C., Vermeiren, R. R. J. M., &amp; Ester, W. A. (2023). 心理、行为和身体方面在自闭症照料者中的照料负担：一项队列研究。.<em> eClinicalMedicine, 63</em>, 102211. (<a href="https://doi.org/10.1016/j.eclinm.2023.102211" target="_blank" rel="noopener">https://doi.org/10.1016/j.eclinm.2023.102211</a>)</li>
<li>Chakurian, D., &amp; Popejoy, L. (2025). 孤独症成人家庭照料者韧性的系统评价：对研究、实践和政策的启示。.<em> 成人自闭症.</em> (<a href="https://doi.org/10.1177/25739581251366361" target="_blank" rel="noopener">https://doi.org/10.1177/25739581251366361</a>)</li>
</ol><p>The post <a href="https://www.doctorheals.com/cn/you-matter-too-reducing-stress-while-caring-for-autistic-adults/">You Matter Too: Reducing Stress While Caring for Autistic Adults</a> appeared first on <a href="https://www.doctorheals.com/cn">DOCTOR HEALS</a>.</p>
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